Permission to Over React

Tuesday, May 11, 2010

Fearful that I will not be able to discern immediately between regular sickness and shunt failure (since the onset symptoms are the same), the doctors have given us permission to be over reacting parents.

Cayman declined quickly with this shunt failure. From the first time she threw up til she coded was less than six hours. That's a fast decline. Typically that level of seriousness of a shunt failure doesn't set in that quickly. But for Cayman, for whatever reason, it did.

I had to laugh at the irony of it. She was born untypical. And in her world of untypical she's even untypical there too. Silly girl. She likes to keep us guessing.

So now on this afternoon when she started not feeling well our flags went up especially since she had a great morning.

We paged the Nurse Practitioner from Neurosurgery. She came to Cayman's bedside to examine things and evaluate why she might be having a set back.

The meal plan orders have now been changed. Cayman is back on a liquid diet.

She ate a big breakfast of sausage and pancakes this morning. Probably not the best meal choice for the day after surgery since the bowels and digestion slow down.

So possibly her abdomen is appearing extra full simply due to the post-surgical reasons (gas, bloating, slow peristalsis, etc.) or it could be the horrible possibility that her scarred belly is not absorbing the fluid the shunt is draining into it.

So we're keeping a watchful eye on her, and of course praying, and now just waiting to see if the noticeable symptoms resolve themselves or get worse and point to another shunt failure.

As always, I'll keep you posted as we know more.

For now we just wait.

Touching noses with the bunny.

12 Showin' Comment Love:

The James Family said...

Oh Kris... we will pray it was just breakfast and nothing else... Lots of love and prayers!!

Michelle said...

Praying for it to be the sausage!

My name is Sarah said...

I'm going with the sausage. I love your bunny Cayman.

Barbara TherExtras said...

Thanks for the update. Just another in the crowd following Caymen - getting well!

The Henrys said...

I'll be praying for her!

I wouldn't call it over-reacting when it comes to questions about Cayman. I would call it being loving parents who are taking excellent care of their child!!

Mary said...

I've never prayed for something to turn out to be indigestion or constipation before but that is exactly what I'll be praying for. As well as the strength to deal with what ever the day brings for you. Sending big hugs your way.

dswillis said...

Not a fan of shunt malfunction here. Been there done that. Know I will do it again...............Praying for Cayman.

Sarah said...

Thats what worries us too, being able to differetiate between sickness and shunt failure.

Thinking of you

KajnBlonde said...

Kristen,

I was wondering since they went into her abdomen to place the shunt could it possibly be gas? I know when I had a procedure where they went in through my belly button, I had a lot of problems with gas.... just a thought...

Mary

Cheryl said...

OH, if only there was a TEST that could actually tell if it is shunt failure. We have gone through sooo many shuntagrams and CTs and they are useless. It is so scary to have to trust your own instincts. Praying for all of you.

Sherri said...

praying it's just the after effects from surgery!

Tiffany said...

OK, so today I will be praying for gas, poop and indigestion for Cayman! ;) Just trying to make you smile...I will continue praying for your little angel...and for you.