The Beautiful Cayman Cindy

Thursday March 27
6:00 p.m.
I do not know where to begin to try and write about today. We met with so many people and took in so much information regarding Cayman's care:

• Car Seat Safety class
• Occupational Therapy-she got her splints on her hands today
• Physical Therapy-we were shown exercises to do with her
• the insurance lady-this required lots of phone calls and some faxing for Mike today
• Neurosurgery-they checked to make sure her shunt is on the right setting and ordered for her to be laid flat again so her fluid drainage will slow down
• The G-tube nurse-gave us a whole instructional lesson on how to care for her G-tube and what to do if it would get pulled out. Tomorrow we will learn how to feed her through her G-tube. Cayman is finished with her continuous feeds and now they are working on getting her full feedings to her every 3 hours, like a normal baby's schedule
• the discharge planning lady (Christy)
• getting all her follow up care appointments set up with Neurosurgery, Cardiologist, Pediatric surgery, Neurologist, Ophthalmologist, and Pediatrician
• Cayman had a hearing test done today. This was one of the last thing done today so by this time she was so disturbed she was almost completely uncooperative, so the test readings were not accurate.
  

I think that might have been everything from today. Not totally sure though. It was a lot!! We're a bit brain dead. Right now the plan is for Cayman to go home on Saturday if all keeps going well. She has to tolerate her every 3 hour feeding schedule. Please pray that goes well.
This picture is of Cayman getting her hearing test done. It was a simple, noninvasive test. Two electrodes were placed in front of her ears and one on her forehead. A tiny instrument was inserted just inside of her ear that made a tiny tiny noise. The test will only work if the baby is sleeping. The machine then reads the brain activity in correspondence to the noise. Cayman would not stay asleep. I tried wrapping my hands around her body so she would feel snuggled and relaxed during the test. This helped some but not enough to make the test readings accurate.


Even though today was busy, Daddy managed to get in some cuddle-time with Cayman.