Monday, July 26, 2010
We are home from the hospital.
Our little Cayman now has tubes in her ears. There was definite fluid they drained but it is not enough to help her hearing alone. It turns out there is a much deeper issue than just the fluid in her ears. The CT scan and ABR hearing test both revealed a hearing loss.
Cayman's inner ear is severely malformed and typically over time the hearing loss gets worse with this kind of condition.
Cayman loves music. She responds to songs we sing and shows we watch. Our hearts feel a little sting of sadness to think that one day she might not be able to enjoy those things in the same way.
Plus it greatly effects her balance and ability in walking. It's not that she will never be able to walk but it will take her some time to get to that milestone. Then you throw in her brain malformation with that and well...she just has some pretty big challenges to conquer.
Our hearts - as her parents - feel sort of heavy knowing there is more added to the list of struggles for Cayman.
But there was a piece of gladness we gripped at as we heard the doctor explain Cayman's hearing condition - It seems it's a miracle that she hears as well as she does.
In fact, for so long she's had us all puzzled whether there was even a problem or not. She responds so well to the things we say.
She will be getting hearing aids. I am looking forward to seeing if they bring any changes for Cayman. It makes me smile imagining her learning to talk and having a conversation with me someday. What fun that would be. But if not, that's okay too. I am deeply in love with my little miracle girl, just as she is. Cayman has us completely warmed with such joy.