Sometimes the Internet is a great source for information. I had never heard of Hydrocephalus until that day in the doctor's office when he told me my unborn baby had it. I went home and googled it. I found an awesome website created by a family that had a little boy, Owen, born with Hydrocephalus. Owen's Mommy created this website so that it would be a helpful source to other parents having a Hydrocephalus baby. The way she has brought together all the information and explains it so anyone can understand all that medical jumbo is amazing and truly helpful. Because of this website I have met many other hydro Mom's. They are my dear dear friends...my support group really. They know and understand. This is the same website that I have spoke of in other blogs where we learned of the Stem Cell Therapy we had done for Cayman at Duke University. Cayman has made her mark of fame along with the other babies that have had this infusion for hydrocephalus on Owen's website. Check it out here. Cayman also contributed by helping others understand about G-tubes on this part of the website. Owen's progress is inspiring. Many of the other hydro mom's have blogs too. If Cayman is right next to me I usually read her all the updates about her friends as well as every comment that people write on her blog. I wheel the bassinet next to me at the computer and she lays there staring at the screen. She is very attracted to anything with bright colors that lights up. The computer or TV screen will grab her attention and hold it longer than anything else. If I ever forget to read her the updates when we're at the computer she informs me. I'm not sure if it was a coincidental moment, I like to believe it wasn't, but she made her little baby squeal noise to get my attention. I started reading out loud to her then and she was perfectly content.
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I am forever grateful to Michelle for keeping up that website. She is literally changing lives by the work that she puts into it.
Owen is such an inspiration. i always look to the progress he is making with hope that Elisabeth will someday be doing the things he is :)
And I too am grateful for my fellow moms of hydrocephalus babies. What great friendships and support. How lucky we are to live in a time when we have the internet to help us connect!
I think she wanted you to turn on baseball. :)
Maybe what she was saying that she wished she could play Mario Cart and beat Daddy :o)
You guys are just awesome. With the week we are having (Owen is in the hospital with a shunt infection) your kind words have been a blessing. Meeting such wonderful families through the website has made all the work worth it and has helped me tremendously.
Owen is doing well, the shunt is out and the EVD is in. He hasn't run a fever since the surgery last night and seems more his usual self. I'll be sure to post updates on our website as I get time...there will be a lot of sitting and waiting this week while he drains.
Thanks!!!
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