An Update to the Updates

Mike decided not to continue on with the 2 day interview with the company I posted about yesterday. It turned out to be different than what we were expecting it to be. It's a blessing he was able to find this out yesterday and not waste two whole days being interviewed and then find out.

For the Cayman update: she is finally scheduled to see the Cardio Surgeon. I've been trying to get an apointment since Monday. I do not wait patiently very well when it's my child's comfort that is put on hold. The Nurse kept telling me that if Cayman gets worse and has trouble breathing or can't keep food down over 24 hours, then go to the E.R. That is good information, but I did not accept it gratefully since it was told to me under the circumstances of them not knowing when the doctor could schedule Cayman. It's not typical for me to be so outspoken. After 5 phone calls and a lot of waiting Cayman finally has an appointment. She meets with the surgeon next Thursday for all the pre-op tests and Friday she has surgery. I wish it was sooner but I'm just grateful that she has an appointment.

Here's what Cayman has been going through to help you understand why this matter cannot wait much longer:

Cayman was not herself over the weekend. Mike and I did not know why for sure. She would cry like normal when she was hungry, and take her bottle with such eagerness. However, after a few sucks she would push it away mad and breathe heavy. Her nose sounded stuffy so I suctioned it a few times thinking that might help. We could clearly see it was something with her breathing. We were not too worried at first. She'd done this before when she had a sinus cold. The weather lately has brought on a lot of colds and allergies for people so we just thought it was that. But then Cayman started vomiting after each meal...a lot. Then we became worried.

We were certain it was not her shunt. She didn't have any other signs of a shunt failure.

It suddenly hit us that it might be her True Vascular Ring squeezing her throat. It was the weekend and the doctor's office was closed. Cayman didn't need urgent attention so we waited til Monday to call. However, from Friday to Monday new symptoms appeared such as:

• coughing and choking while eating
• noisier breathing than usual for her
  
• unable to finish a full bottle...she'd get tired half way through
• lack of endurance for her physical therapy exercises
• cry for no reason

So we saw the symptoms get worse over the matter of a few days and that is why I found it completely unacceptable that the doctor's office, at first, would not try to squeeze her in but instead let it become an E.R. case.

I fear it's going to be a long week. Cayman is not sleeping well. She fusses a lot. We've discovered the vomiting is controlled if she eats half a feeding at a time. Thankfully she's happy taking a smaller amount.

Thanks for all the prayers!

I took this video on Sunday. After playing it back I realized you can hear some of Cayman's noisey breathing in part of the video. It's towards the beginning. It's an airy gasp. Oh and sorry the picture is a little jiggley. Cayman kept grabbing the camera's wristband.