So we're just waiting around to hear from the Neurosurgeon and his decision about us going home. He is out of town right now. He left yesterday afternoon. If we would have waited to bring Cayman to the hospital Monday morning instead of in the middle of the night he would not have been around to do her surgery. Which we've been told a Shunt Revision is a pretty straight forward procedure, not too complex, so another Neurosurgeon would have been able to do it just fine. But we like having our doctor do it because we know him and he knows Cayman the best. So we're glad it worked out that he could do her shunt revision before he left town. I'm not sure why it's taking so long to hear what his decision is. Waiting sucks!
Yesterday evening we went to the Ronald McDonald House, checked in, and then took a nap. When we woke up we went back to the hospital to be with Cayman. She was wide awake. She looked so good! She even gave us a few smiles. She still had her nasal cannula on, and she just seemed so uncomfortable with it especially since she still has her stuffy nose. The nice part about being at the hospital is the nurse can take out their awesome sucker and get all that snot out! Mike asked the nurse if she could remove the cannula since Cayman's oxygen levels were great during a time when the cannula had fallen off accidentally for awhile. The nurse said the doctor hadn't ordered for it to come off yet. Mike's response was "As her parents, can we order for it to come off?" :o) So the nurse removed the tape and took the cannula off. Cayman gave her a big smile once it was off! It was so cute! She was a much happier baby without the cannula taped to her face.
Cayman was so hard to leave last night that we ended up staying with her until 3 a.m. Then about mid-morning today we received a phone call from Cayman's nurse. She said it had been about 4 1/2 hours since Cayman's last feeding and she couldn't get her to eat again. We told her that at times that is typical and just let her sleep for a little bit more and soon she'd wake up hungry. An hour later the nurse called back sounding a little stressed because she still couldn't get Cayman to eat and she asked for some "Parental Help". Mike and I were about to leave for the hospital anyways so we headed out right away. When we got there, Cayman was still sleeping. We talked to her for a little bit and she woke up. I gave her the bottle and she sucked it right down. She was just being ornary for the nurse...I would rebel too if I had to be in this place again.
By the way, Grandma Sue made it home just fine yesterday evening after being awake for a day and half. She got some good sleep last night!
To Go Home or Not To Go Home?
Tuesday, April 29, 2008
Posted by Kristen at 3:31 PM
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6 Showin' Comment Love:
Cayman reminds me of her mommy who used to pretend she was asleep when the respiratory therapist would come for a treatment since the orders read for treatments to be done only while awake.... :o) ..
Love you Sunshine!!!
I'm so happy that Cayman is doing so great! Baby gummy smiles are the BEST...wish I could see them, but I know they are SO hard to catch with a camera! :) Praying that you get info soon...you're right, waiting sucks!
I love that Mike reminded the nurse that you are the parents and that you are the ones calling the shots for Cayman. I think that sometimes the medical people forget who's really in charge.
I hope that you get to go home soon and get back into your regular routine :)
I love how much of a personality she has! That is too funny :)
Hope you get to go home soon!
yay for Mike!! So proud of you two for telling them what u want for Cayman!! I had to crack a little laugh when I read about her just not eating for the nurses as well!! What a ham!! Praying for your homecoming!!! :-)
Valerie and Nicholas
Kristen,
I hope the three of you got to go home yesterday. Cayman must be fiesty! What a strong girl! We're praying for your family.
Jill
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