I was cleaning out today. I came across a journal I had kept during the beginning part of my pregnancy. It was before my 20 week ultrasound when my baby was diagnosed with Congenital Hydrocephalus. How strange it was to read my own thoughts from back then. How different they were then compared to the 2nd half of my pregnancy. It felt like I was reading someone else's journal, like it was a different time, or a different situation. I stopped journaling after that ultrasound. I wish I would have kept it up. I'm not exactly sure what I would have written. It's been hard for me to know how to put all my feelings into words, which has been one of the main motivations for creating Cayman's blog. I find it healing when I can figure out how to express myself. Otherwise if I can't put my feelings in some form of words that make sense, then everything just stays bottled up and I become emotionless so I can feel less. I don't like who I am when I do that. That's why you'll find me talking in circles sometimes trying to figure out what I'm feeling because once I can know, usually I can find a direction of where to go from there.
Now and Then
Wednesday, April 23, 2008
I can remember the complete devastation I felt when the doctor broke the news to us that day in his office. I quit listening to his report just so I could concentrate on controlling my tears. I knew if I kept listening I would cry so hard I would not be able to breathe or talk...and those are the kind of cries you want to do only at home, not in a doctor's office. I remember wishing there was a way out to the parking lot without having to pass through the busy waiting area full of other pregnant women. I wonder what the other women thought when they saw Mike and I leaving that day with so many tears on our faces. I know what they felt. I use to have those same thoughts before my baby's diagnosis. You can't say you know what the pain feels like, but you can totally identify how dreadful it is. I know I would have never been able to journal the pain I felt then. There were no words, nothing that could describe what we felt. The pain now is not the same as it was then. I think having Cayman tangible makes that difference. There is still pain but it's different than it was. And maybe it's not the pain that is different as much as my need and desire to hold my baby close can and is being fulfilled. So I have some joy along with the pain, making it more bearable. There was so much unknown and there actually still is but it seems less scary. I didn't say not scary at all, just less. Which is huge because it makes this situation more doable. Before I didn't know how I was going to handle this. Mike and I have agreed we don't know how we are handling it. You just do what you have to do when you have to do it.
But see this little face? She makes it doable for us...a lot easier...completely worth it!!
Posted by Kristen at 1:29 PM
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9 Showin' Comment Love:
I love that little face!! she is adorable!! :):)
I think that journaling is so importnant so that we can go back and see how life was, and see how we felt at different times and in different situations. It also helps so that we can get emotions out and learn from our own experiences.
Blogging fulfills that need for me. Blogging also allows us to share our experiences with eachother and help eachother grow and learn. I am so inspired by so many blogs that I read. Especially yours.
Cayman is beautiful. She looks completely peaceful. It is obvious that she feels all the love that is around her.
You guys are doing a wonderful job handling everything, if you didn't still have moments of sadness then I would worry about you! Journaling is so important, it lets you get your true feelings out. That pretty little face can make anything better!!
You do such a great job my Sunsine with words and emotions!!! Cayman is such a inspiration plus a Cutie! The word love just doesn't begin to express just how great our feelings are for her!
She is an absolute angel! I have enjoyed reading your blog so much today :) My son has hydro as well and is 3 months old. My blog is http://sherrilee.wordpress.com and we also have a care page through the hospital he was born with TONS of photos and more "technical" information about his progress. That is: www.carepages.com and his page is name is MilesJacobLee.
AMEN!!!
I've added you to my "blog roll" as well. Thanks for your sweet comment about Miles! We love it when he smiles, too :)
Thanks for your comment. You are so sweet.
It was great to be able to reflect on that time and write that all out. I never want to forget all that we have been through, and all that we have felt.
It's just strange that it was just one year ago that we found out. I can't believe that there was a time that I didn't know what hydrocephalus was. In fact, I told Donald on that very day that we would look back and be in awe that there was once a time that it had no part in our lives. Since that day SO much has happened. And now I have a happy and healthy (her body functions great, it's jsut the brain that has a few problems) baby!
About the Holland story. I read it over and over because it is amazing to me that someone could write a story that explains exactly how I have felt. And I think of you, and Owens family, and a handful of others everytime it mentions those that we have met.
I know that someday our families will meet. Someday when things calm down a bit and when Elisabeth and Cayman are a little older and can enjoy eachother's company. I just know that they will be friends for life :)
One more thing. I took Elisabeth in for her 7 month pictures this morning. We went to JC Penny's and I spent the extra 5 dollars and ordered the 'Smiles by Wire'. They email the entire sitting to you! It takes a few days, so I'll probably have her new pictures up the beginning of next week. They turned out great. We actually got her to sit up....all by herself, unsupported......for a few seconds!!!! So there are one or two pictures that they snapped of her sitting. She had never done that before. She has really taken off this week. We have seen SO much progress, it's just amazing!
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