I'm not sure why we didn't get to go home yesterday. We never heard from the doctor the whole day. But it turned out to be a good thing though because by this morning Cayman's head had already started to cave in. So her shunt setting was changed to slow up the drainage. I was nervous that this wouldn't work and we'd be right where we were before when she was over draining and facing another surgery to correct it. But so far it seems her head is responding to the adjusted setting. We're so glad for that!! We see the Neurosurgeon on Friday.
Cayman finally got her button G-tube put in. Poor thing cried through the whole experience! She cried more frequently after that all afternoon. That is very unlike her. She only cries when she's hungry. If anything is wrong normally it's just a fussiness, not really a cry. But she really cried and we coudn't get her to stop at times. I have to admit I was very nervous leaving the hospital with her like this but she got better about an hour before we left. And she slept most of the way home. We think it's just her adjusting to the new G-tube. 
The balloon on the end of the button is larger than what she had with her last G-tube so her tummy might feel a little irritated until it gets use to it. She already seems better tonight. The picture on the right shows the button. The balloon is the part that goes inside her stomach.
Cayman's hospital room in the Moderate Care was a large room with 3 beds in it. Most of the time her other roomies were two other baby boys. The one boy (Lucas) had been in the hospital for 3 months. His family is staying at the Ronald McDonald house and they recognized us this time from last time. They are from Toledo, OH so it was fun making that connection since we live close to there. The other little boy (Hudson) came in as a 2 day old with a heart defect. He'll be having surgery tomorrow.
Here's Cayman taking a nap before she was discharged. 
She was wide awake ready to say "hi" to Grandma Sue when we got home. Grandma Sue was ready and waiting at the door!
6 Showin' Comment Love:
Cayman looks so adorable all curled up in the one pic! glad you guys are finally home! :):)
I love the picture of her asleep on the bed....such cute little legs.
I am so happy that you got to go home!
I'm glad you guys are home now, but glad you stayed yesterday so they could lower her setting. That picture of her crying is so pitiful, poor baby, that doesn't look fun at all!!
So happy you are back home. I believe you will be pleased with the mic-key button. My Shaley has had one for 15 years and it works well. Hang in there. I pray for you every day and follow the blog closely.
Cheryl
so glad you guys are home. My pregnant hormones kicked in when I saw the pic of her crying...poor baby. But then the one of her in her hospital gown all curled up taking a nap, made me smile again!!! :-) Very precious!!
valerie
Hi there :)
I just stumbled across this blog one day. I don't know y'all but I just wanted to let you know I pray for Cayman and check on her blog every day. She is beautiful and I will keep praying for y'all!
~Charis
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