It looks like we might be making another unplanned trip to Ann Arbor tomorrow. Cayman's head has grown almost a whole centimeter since Friday! I'm not sure if this means the shunt is plugged or not. Her head is almost back to the size it was when she was born!! Also, there is some puffiness around the shunt valve. The doctor wasn't concerned about it on Friday. He said it could just be some Cerebrospinal Fluid leaking out around it and that happens. I guess at this point everything is concerning me!! Cayman was smiling for Daddy and me today but at times she's either very fussy when she is awake or sleeping a lot, unable to stir her even past feeding time. It's difficult to know if this is just typical baby behavior or if it's because of the fluid increasing in her head. Yesterday she was not like that so again it's tough to know if it's something serious or not. Her eyes are back to doing the sunsetting (rolling downwards) thing a lot more, so I believe a lot of this is because of the increase in her head pressure. Daddy and I hate the thought of checking her back into the hospital. Maybe that won't have to happen. We already know she is going to need her shunt redone around 6 months of age. Her shunt empties the fluid into her heart. Typically a shunt is placed in the abdomen. Somewhere around 6 months she will have the shunt taken out of her heart and put in her abdomen. We know this shunt revision is going to happen and we've accepted it because we have to. In my mind there is this "check-off list" of all the procedures she needs to have done. It feels relieving to "check" one off and then move forward. I feel very uncomfortable with the thought of my "check-off list" growing.
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3 Showin' Comment Love:
You're such a good mommy for being so vigilent of her care. We'll be praying for you tomorrow. Let us know when you can!
Always remember, you're mommy, so go with your gut. If something doesn't feel right or Cayman seems to be acting different don't be afraid to speak up. Medical staff see a lot of everything and eventually everything seems to be normal. Mommy knows best, so don't feel bad telling the Docs and nurses things that concern you.
-Melisa M.
Go with your instinct, you know Cayman the best! I hope she doesn't have to have another surgery, I will be praying for you!!!
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