Sitting Tall

Here's the latest video of Cayman sitting tall and pretty in her BeBe Pod. I didn't realize her hair was so messy until I watched the video. Towards the end she starts to grumble and you can hear she's kind of hoarse from this cold we've had all week. Daddy's sick now too. But look at Cayman grab the toy with that left hand!!

Frog & Duck

Our old neighbors in Indiana got Cayman these jingle tag along toys. (Thank you Tom & Becky!!). Cayman loves them!I know the videos are pretty much her doing the same thing but they are all so cute. I could not choose which one to share, so I posted them all.

Carrots

Every baby has to have a messy-face picture.

Another Blog

See the time of this post? 2:30 a.m.!! It's been awhile since I've been up so late. This hour of the night use to be my regular blogging time before Cayman figured out night time means sleep time.

Cayman is still sick. That's why I'm up tonight. She's snuggled in my arms and is back to sleep now. I am starting to feel better. Thank God for Mucinex! That stuff works!! It stinks that I have to throw away all of my pumped milk while I take it but it's only for a couple of days.

So what does a mommy do while up so late holding her sick baby?

• A.) Watch Nick @ Nite
• B.) Create another blog
• C.) Enjoy every minute holding her baby
• D.) all the above

*ding ding ding*

and the answer is...

D. ALL THE ABOVE

So you're probably wondering what this other blog is that I created. Good! Because I'm excited to present to you my newest blog addition. Click here.

Lots and Lots of Pictures

At Daddy and Uncle Mark's football game.
Chowing some Monk.
Asleep in the Moby Wrap
Discovering Daddy's chin hair.
Happy Fall!!
Watching football with her favorite guy.
Our friends Jennifer and Jason and their new baby, Mackenzie. I like the look on the babies' faces. They have the same look but are looking in different directions.
I love this face she makes.
She can hold it all by herself...well for about 5 seconds anyways, which is just long enough to get a polaroid.

Working hard at Physical Therapy with Miss Jenn.
See her hands? Is that a gang sign?!?!
She has feet...and she loves them!!
First time in her high chair. She's staring at the ceiling fan.
Check out how well her hair has grown back in. I wonder how much longer it would be if it had not been shaved 4 times from her shunt surgeries.

Thumb Brace

It's been exactly 3 months since Cayman's last shunt revision!! YAY!! Her more serious health issues with her head and stomach have been stable. So now the focus has been turned to the more "minor" details of her health, such as her hands. Cayman was born with a few skeletal malformation.

Her wrists stay inverted.




















Her right thumb has an extra bone.



























Her left thumb stays flexed into her palm.
The X-ray showed the joint did not fully develop. She never brings the thumb out from this flexed position. In fact she never moves her thumb. There's been question if she is even capable. We push it out to stretch it and help maintain its range of motion. As we have it stretched she will resist so we know she can pull it back into her palm but she never brings it out. It's a mystery why.

Part of Cayman's weekly therapy is working with the function of her wrists and thumbs. Last week the Occupational Therapist ordered her this thumb brace.With her thumb out of her palm she is now able to hold onto toys with that hand!

Deferred Dreams

**WARNING**
This is an extra long post.

Back in college Mike had taken an African American Literature class. The books and reading appealed to me so I read them myself. Of course, Mike did not mind. He was so busy with his important engineering classes that a minor elective like this got lost in his intellectual world. At times it was helpful to him that I had already read that day's assignment. I would give him the high points of the stories or poems and off he'd go to class leaving me totally jealous that I could not sit in on the lecture.

I am no brainiac, who naturally deciphers symbolic reading. If there's a deeper message hidden I will often miss it. I'm more of a Spell-It-Out-For-Me kind of girl. But there was one poem that has stuck with me. It was simple and easy to understand.

Dream Deferred

What happens to a dream deferred?
Does it dry up
like a raisin in the sun?
Or fester like a sore--
And then run?
Does it stink like rotten meat?
Or crust and sugar over--
like a syrupy sweet?
Maybe it just sags like a heavy load.
Or does it explode?

--Langston Hughes

Hughes says:
"Does it dry up like a raisin in the sun?" A raisin is already dried. It's useful, editable, and nutritious like that. But leave a raisin in the sun and it becomes hard and impossible to eat. It's value is sucked out. It no longer can serve its enjoyable and nutritional purpose.

He then says:
"Or fester like a sore and then run?" If you have a sore you want it to dry up. That's when it can heal. But if it festers that's when it getsit gets infected and takes it much longer to heal. The dream that festers gets infected with the disease of dissatisfaction and restlessness in life. That's an ugly place to be. Depression sets in and unhappiness spreads out to all areas of your life. Sometimes the person even strikes back at WHO- or WHAT-EVER is deferring the dream.

He also says:
"Does it stink like rotten meat?" I once left some raw tenderloins in the refrigerator too long. When I took them out and removed their plastic wrapping their odor was so rancid they immediately were discarded into the garbage can and taken to the curb. It was completely unusable, worse than just a dried up raisin. You don't want anything left around from that meat...for even just the memory of its smell alone makes you gag. You don't want a deferred dream to get to this point either. It's completely wasted, unusable.

What next:
"Or crust and sugar over like a syrupy sweet?" I use to buy a big bottle of honey but we could never use it up fast enough before it became all thick and crusty. A dream that is forced to sit idle hardens into an unusable substance of destructive thoughts of doubt, despair, and anger.

Then He says:
"Maybe it just sags like a heavy load." Mike likes to leave his 30 pound dumbbells in the living room. When weeks start to go by without use their presence in the living room begin to irritate me. So I pick them up and carry them back to our spare room. As I'm walking down the hallway their load slows me down. Perhaps a dream deferred slows the person down as it weighs heavy on the mind, often manifesting into the deep pit of "What if's" and "What might have been's". These useless thoughts dip back into the past and weigh heavy on the mind of someone that has had to defer a dream. Depression is usually not too far around the corner then.

Last, he says:
"Or does it explode?" This one I'm not sure of...what explodes? The dream? The person? What does an exploded person look like? Is it rage? Completely unhappy with everything? Mental breakdown? Suicide? Or do you blow up the dream so you can rebuild it?

At first I found Hughes kind of whiny. Then he got me thinking. We all have dreams...goals really, for our lives. We almost define ourselves by them. They give us something to look forward to...something to press on towards. But sometimes something happens that defers a dream...perhaps makes it completely unreachable. What do we do when that happens? It's an important choice because what we do with a deferred dream effects our quality of life.

Life is full of struggles; trials, and tribulations; and overall, it’s a learning process that takes a LONG time…and as we get older, we look back and reflect on those learned lessons.

I consider myself an optimistic person but there are days when even I look up to the heavens and ask, “Why me, Lord?”

I think that's normal. Perhaps it is part of the process of moving on from the hard times in life. I always try to watch out for the negative ruts my mind is tempted to get stuck in. Those negative thoughts will penetrate and then permeate from every pore in my body. If negativity sticks around long enough to become a habit, that is a terrible place to try and recover from.

I feel so lucky to have married a man that is a very optimistic person. Mike naturally looks at the brighter side of things and his example helps me learn how to carry on.

At times this blog has been a way for me to constructively channel my feelings, work through my negative thoughts, and reach the goal of arriving to a better state of mind. It's a process.; facing reality, grieve, and then move forward. My belief is, in all things, there is a silver lining. It's God's way of showing us He's still here among us in this fallen and broken world.

So here's me working through my latest grief:

My C-section for Cayman's birth throws in a complicated twist in our plans for future kids. Two doctors have given us the opinion that I am high risk if I get pregnant again. That even if everything develops naturally for the baby I will be in a high risk clinic due to the complications of birthing another baby. Because epidurals do not work in my spine, general anesthetic is the only way to go. The surgeons cuts quickly to get the baby out before the general anesthetic reaches the womb. Cayman was born only one minute after the gas mask was placed over my face. Two doctors have given us the same opinion; that while surgeons do try to cut carefully they can't always see what they are cutting when the area has scar tissue from previous surgeries. A surgeon could cut a main artery or nerve accidentally. If they nick a nerve it could leave me paralyzed. If they hit an artery the risk is bleeding to death.

So those are my risks.

Pretty big I'd say!

We feel the gamble is quite high...is it really worth the risk, especially since our dream of more kids can still come true through adoption. We always talked about adopting even if we could have our own kids. I wanted to have one of our own for sure. I wanted the whole pregnancy experience. Ok, maybe not the WHOLE experience. I would have been OK not knowing the "morning sickness".

But I wanted to know what it felt like to have a baby move inside of me, see their developing body on the ultrasound, bond with them before they were born, see what I looked like with a pregnant belly, wear maternity clothes, hear my baby's first cries, see who the baby looks like, and see the look on Mike's face when he realized he was a daddy. I wanted people to come visit us in the hospital; watch them "ohhh" and "ahhh" as they passed my baby from person to person.

I did get my wish of being pregnant but hardly any of that process went according to my dreams. The day Cayman was born was far from the experience I imagined it would be like.

Let me go back to that day:

March 8th somewhere around 10:30 p.m.
I felt my body moving as I slowly opened my heavy eyes. I could hear people talking as they pushed my hospital bed down a brightly lit hallway. I tried to make out what they were saying but their voices were muffled. I blinked a few times trying to get my eyes to focus. With each blink I started to fully come back to reality. It wasn't a dream. I must be out of surgery. Still groggy from the general anesthesia and whimpering through the pain as I waited for the Morphine to do its magic, I asked the nurse, "How did it go?" I couldn't bring myself to ask specifically "How is Cayman?" I feared the answer but felt so desperate to know. The nurse said, "Everything is good. The doctor did have to cut your uterus vertically to get your baby out because her head was too big for the lower cut." I knew that meant all future births would be done by C-section. That hardly seemed important to me at the time. The nurse didn't quite understand that my question "how did it go?" was not me inquiring about my surgery but my baby. Gripping at my now flat stomach I was forced to say it. "And Cayman, how is she?"

"Baby's doing good. Dad's with her right now."

Then the nurse showed me a picture of Cayman taken soon after she was born. Oh she looked terrible!! Her head was much bigger than we anticipated, her coloring was funky, and her eyes were not centered. I couldn't tell from the picture if she was really doing good or not. I was so startled by her appearance. I did not know what I would find. A baby with no response? Did good mean she was breathing on her own? Did she cry? Can she feel pain? Is she more than just a body with a beating heart? I needed to see Cayman for myself before I could believe anyone that she was doing good.

Somewhere around 1 a.m. I was ready to leave recovery and go to my hospital room. But first the medical team had a surprise for me. They wheeled my bed right into the NICU so I could see Cayman. I think they were able to do this because it was in the middle of the night. There's not a lot going on during those a.m. hours.

Rose, the NICU nurse, picked Cayman up and placed her in my arms.

"Hi my baby!"

Cayman turned right toward me! My baby knows my voice!! I almost thought I had imagined her immediate response to me but everyone that was there saw it too! She was making cute little baby noises and seemed so aware of us. She really was doing good!! I felt so happy. Peace.

When I was being discharged 4 days later, the OBGYN was getting my prescriptions all written up. He wanted to write me a script for birth control pills. I have tried those before...different kinds. I do not feel well on them. I am an emotional wreck while taking them. So I declined the prescription explaining to him why. He strongly urged me to be cautious on getting pregnant again. First off, we needed to wait at least a year to allow my large incision on my uterus to fully heal and then we needed to consider the risk we would be taking in having more kids.

As he talked his words barely penetrated my thoughts.

I heard the words:
bleed to death
paralysis
dangereous

All I could think was:
Kids? Like I'm ever going to do this again!

I guess enough time has passed now that I find my thoughts floating back to the idea of having another baby someday. But that's where it stops. It's a deferred dream now.

It's not an easy one to get over.

But in all honesty, God knows what my heart's desires are. And I know that those things in life that sometimes don’t make any sense at all, they hold all the potential to make us into better people. There can be a “silver lining” in everything if we choose to see it that way.

I'm so thankful for Cayman. We didn't know if I would ever be able to have children at all and now we have precious Cayman. And someday, when God knows we're ready, He will place another child in our arms.

Until then, I place my deferred dream at the feet of Jesus, with all the belief in the world that someday He will give it back to us, making it come true, or if not, He will bring me to a place of complacency.

Sick

The only part of life before kids I knew I would miss is when I would be sick...being able to sleep when I want for however long I want.

Well it's happened. For the first time since Cayman was born I am sick. Cayman is under the weather too.

I hate being sick. Feeling miserable. Dishes that need washed. Laundry waiting to be done. Messes to be picked up. But no energy do any of it.

It's not all that bad actually. Daddy's at home with us. He's not sick but he mildly injured his hamstring this past week at football practice. Apparently playing in a game against the 8th graders is brutal.

Daddy may move a little slower than usual but he's doing a great job nursing Cayman and I back to health. He's cooked awesome meals, washed the dishes, fed Cayman, and even vacuumed. What a guy!!

Mike's job search still continues. The potential opportunities that have come through so far would require us to relocate. We just moved!! We don't want to move again!!! So the plan is to hold out for a few more months before we get desperate and geographically widen the search.

BeBe Pod

It's fun watching the changes in Cayman's strength from week to week. Since last week she rolls herself from her belly to her back now, and when on her belly she lifts her head and shoulders off the ground for a few seconds. Her head control is getting so much better. She's a bit of a bobble-head still but it's coming along well. I thought I would try out her BeBe Pod today. She sits in her corner chair for up to 20 minutes at a time so I was curious at how well she could sit without support behind her head.

Check her out!!!I took a receiving blanket, rolled it up and stuffed it in the BeBe Pod so she would have full torso support. She doesn't quite fill out the Pod. She's such a tiny tot. She's finally over 13 pounds...but only by .07 ounces. Once her torso was fully supported she was able to control her head. She tolerated it for only 1 minute and she started to topple over. She wanted to keep playing with the toy though even as her head was tipped to its side. She looked terribly uncomfortable so I took the tray off to take her out and she was not happy. She didn't want to stop playing.

It's My Choice

I haven't had a lot of time for writing lately. Our calendar is full! Last week Mike was very frustrated because it was difficult for him to find time to do his necessary job hunting. We are trying to rearrange and push appointments back as much as we can, but yet we have to get in as much of it as possible while we still have this insurance. We have reached our maximum out of pocket so in hopes to save we're trying to get in as many appointments under this coverage.

My attitude through all of this is less than desirable. I'm so grateful Mike is very forgiving. So many times I have raised my voice more than I ever meant to. I would think to myself, "Wow, that's not the way I want to sound. Let me try that again." I would apologize and reset my tone and my words. That sounds better.

I was with my little sister Madison the other day. She was in desperate need of a nap and her attitude reflected that. When I spoke to her she responded back to me very harshly. I calmly told her, "I know you are tired but you can still be nice."

As soon as I said it I thought, "Whoa. Did I just to say that to her or was that meant for me?" I guess it was a message we both needed.

The weight of our cares these days are more than our share. Things were heading in a positive direction for us...Cayman's health was stable and we were seeing less Doctors each week. Mike and I had met with a financial adviser to get a professional direction on how to compile all our debt so that we can get our finances back into a comfortable area. I was so gitty about it. I know it is still several years away before we can afford it, but our goal is to have a home of our own again. The job loss pushes that back even further. The homemaker in me just breaks. Now Cayman is falling behind in her vision, hearing, and motor skills. I'm tired. I'm not sleeping well. But I realize I have a choice, every second of each day, to serve my Lord. I can honor Him with my speech, with my thoughts, and with the way I love those around me. With every moment there is another opportunity. It's up to me...it's my choice.

Mike and I were reading Philippians 4 tonight. I found verses 8 and 9 to be particularly helpful:

...whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable-if anything is excellent or praiseworthy-think about such things...put it into practice. And the God of peace will be with you.

Whenever I choose to put into practice my kind words...I am more at peace

Whenever I choose to put into practice positive thoughts...I am more at peace.

I can do this no matter what my attitude is...no matter what my circumstance is.

I say that as my own cheering section.

I can do this.

I can do this.

It's a choice. And I choose to be nice no matter how tired I am.

My 6 Month Old

Naturopathic Doctor

Cayman saw her Naturopathic Doctor yesterday. Her numbers keep looking better and better. Any numbers over 5,000 are of a concern and showing deficiencies in the body. At Cayman's first appointment her numbers were 16,000. The 2nd appointment they were just under 12,000. Yesterday they were 9,000.

We are definitely seeing her improvements through her development. Her Naturopathic Doctor could see a difference in her. He commented on how alert and observant she is.

Fox in Socks

Have you read this book?

The first page reads:

Take it slowly. This book is dangerous!"

"What? How can a book be dangerous?" I said to Cayman when I read this book to her a few weeks ago.

I found out, it's true...a book can be dangerous.

By the end of the book I could barely talk anymore. I was no longer comprehending what I was reading. I had to put my full concentration in just reading each word and pronounce it correctly.

You have to read this book...and you have to read it aloud...you'll see exactly what I'm talking about.

Yesterday, during story time, I pulled Daddy over and had him read this book to Cayman.

I was cracking up so hard listening to him read this book.

Zoo

Grandma Cindy is soon starting a new job. She has some time off during the transition from her old job to her new one, so her and Madison planned a trip to the zoo. Mike and I had the day free, as well as free passes to the zoo so Daddy, Cayman, and I joined Grandma Cindy and Aunt Madison to the zoo yesterday. Our hot hot summer days are less and less now. It was very comfortable and all the kids are back in school so it was not crowded. We had a lot of fun. I did not think taking a 6 month old to the zoo would be all that exciting. I was particularly gitty. I love the zoo!! But Cayman was a lot of fun...especially in the aquarium. She loved the glow from all the tanks and stared in amazement.

Arriving at the zoo.

Aunt Madison immediately grabbed a mapped and said, "Let's see where we should go first." She's 3 1/2 years old. She cracked us up!Look close...do you see Cayman's reflection?

Riding the Carousel...

While Daddy and Cayman watched.Riding the train.In the bird house a few of the birds were flying around free. Grandma Cindy did not like being in the building among the flying birds. She was more comfortable just peaking in and Madison mimicked her...or perhaps was mocking her.This is Cayman's look of wonder as she watched the fish swim in the aquariums.